User-Centric Health Charter

Name
User-Centric Health

Purpose
This group is designed to develop a set of patterns for enabling user-centric health platforms and applications that enable a person to have control of their health information in a way that promotes an ecosystem including providers, payers, and team.

Principles
This working group will operate by the Identity Commons principles.

Practices
This group will use Identity Commons-hosted mailing lists and wiki resources, as well as Google Docs for spreadsheets, presentations, and documents.

This group uses public Identity Commons-hosted mailing list and all its meeting notes will be publically published on posts to that list.

http://lists.idcommons.net/lists/info/usercentrichealth

Meeting notes are published here:

12/18/2008, Meeting 1:  12/18 kickoff notes

1/28/2009, Meeting 2: january meeting

Requirements of Participation and How to Join
There are no requirements for participation. To join the group, edit the wiki and put your name on the list below, and sign up for the mailing list provided http://lists.idcommons.net/lists/info/usercentrichealth

Licenses and/or Restrictions on Usage of Work Product
There is no current licenses or restrictions on the work product of this group.

Current Deliverables and Milestones
Complete working prototype and specifications

First drafted example use case: http://docs.google.com/Doc?id=dfk7n8fk_2dr68h4c4&hl=en

Supporting diagram for first example use case: http://docs.google.com/Presentation?docid=dfk7n8fk_4hn4vt5g5&hl=en#

Inventory worksheet for use case actors: http://docs.google.com/Doc?id=dfk7n8fk_103f9tr2vvw&hl=en

Information matrix for detailing different classes of health information in an individuals ecosystem and what implications are Example Information Sharing Matrix

FUTURE: Complete economic proposal for Health ID Trust Slides: Slides from IIW

Current Meeting Schedule
We meet on the 4th Tuesday of each month, at 11 a.m. Pacific Time.

Our next meeting for User Centric Health (UCH) is 11 a.m. Pacific Time April meeting on 4/28.

Meeting logistics

Topic: User Centric Health Date: Tuesday, April 28, 2009 Time: 11:00 am, Pacific Daylight Time (San Francisco, GMT-07:00) Meeting Number: 576 128 532 Meeting Password: blueDot1

Call-in toll-free number (US/Canada): 866-469-3239 Call-in toll number (US/Canada): 1-650-429-3300

Next meeting agenda:

- Review notes

- Review base use cases, make comments, vote on readiness to proceed to next steps (or work further on them)

- Review actors, actor readiness, actor actions

Current Membership

 * Mike Kirkwood, Polka
 * Paul Trevithick, Parity
 * J. Trent Adams, DataPortability Project HCTF
 * Joseph Cerro, DataPortability.org Health Care Task Force
 * Drummond Reed, Cordance, Parity, OASIS XRI & XDI TCs
 * Dean Landsman

Sign up for the mailing list provided by ID Commons http://lists.idcommons.net/lists/info/usercentrichealth

Current Stewards Council Representative and Alternate
Stewards Representative - Mike Kirkwood

Alternate Representative - TBD

Current Links
User-Centric Health

Related Groups (Suggested)
Open ID Foundation

Information Card Foundation

Project VRM

OASIS XDI Technical Committee and XDI Commons

Health 2.0 Accelerator

Data Portability Healthcare Task Force

ASTM E 31

Liberty Alliance

OASIS ebXML RR

History
Health is a unique use case of the internet identity, it has special because of the privacy and sharing requirements of the data.

Many individuals have a keen interest in how Health plays out using the internet and the web.

This group was started to focus on taking the document and data standards of the Health community and packaging them on behalf of a user in their user-centric identity, and create a working stack to share with the community and evolve as group.

The groups initial sponsor was Mike Kirkwood, a new Identity Steward, who has been participating in IIW and Health 2.0 group. The group is also being guided by Drummond Reed's strong background in XDI and Dean Landsman experience in user centricity. The group is focused on using technology fuse health into identity and to preserve the person's voice and control.

Many voices are working for health and this group is focused on enabling a networked document standard for transporting health information using a person point of control.