User-Centric Health Charter

Name
User-Centric Health

Purpose
This group is designed to develop a set of patterns for enabling user-centric health platforms and applications that enable a person to have control of their health information in a way that promotes an ecosystem including providers, payers, and team.

Principles
This working group will operate by the Identity Commons principles.

Practices
This group will use Identity Commons-hosted mailing lists and wiki resources, as well as Google Docs for spreadsheets, presentations, and documents.

This group uses public Identity Commons-hosted mailing list and all its meeting notes will be publically published on posts to that list.

Requirements of Participation and How to Join
There are no requirements for participation. To join the group, edit the wiki and put your name on the list below, and sign up for the mailing list provided http://lists.idcommons.net/lists/info/usercentrichealth

Licenses and/or Restrictions on Usage of Work Product
There is no current licenses or restrictions on the work product of this group.

Current Deliverables and Milestones
Aggregating discussion amongst those thinking about user-centric identity tools and their role in health care systems.

Develop description of a User-Centric Health software scenario to reduce to set of use cases and implementations Use Case Summary

Build scenario information matrix for detailing different classes of health information in an individuals ecosystem and what implications are Example Information Sharing Matrix

Map out basic components (software, standards, working groups) to include in technology recommendation

Complete economic proposal for Health ID Trust Slides: Slides from IIW

Current Meeting Schedule
First meeting for the group will be in December 18th at 10:00 A.M. Pacific

Topic: User Centric Health Date: Thursday, December 18, 2008 Time: 10:00 am, Pacific Standard Time (GMT -08:00, San Francisco) Meeting Number: 575 130 394 Meeting Password: blueDot1

--- To join the online meeting --- 1. Go to https://polka.webex.com/polka/j.php?ED=115776877&UID=0&PW=7f2f5bd7dd5900141620054d46 2. Enter your name and email address. 3. Enter the meeting password: blueDot1 4. Click "Join Now".

--- To join the teleconference only --- Provide your phone number when you join the meeting to receive a call back. Or, call the number below and enter the meeting number. Call-in toll-free number (US/Canada): 866-469-3239 Call-in toll number (US/Canada): 1-650-429-3300 Global call-in numbers: https://polka.webex.com/polka/globalcallin.php?serviceType=MC&ED=115776877&tollFree=1 Toll-free dialing restrictions: http://www.webex.com/pdf/tollfree_restrictions.pdf

AGENDA FOR FIRST MEETING

1) Confirm practices and procedures for becoming a group in ID Commons

2) Discuss initial charter definition, use case, projects, and roles (including steward representatives, contributors, observers)

3) Define first use case and outline architecture to test against scenario presented.  Am hoping this step can set a goal of  working set of user examples to model end-to-end package to describe the opportunities for deployment and other works

4) How to best learn from and work with other User Centric Health groups in the industry like the DataPortability, Liberty Alliance, ANSI and OASIS groups which are also dedicated to this same topic (it may not be called "user centric" in each instance but it is basically the same topic in each instance).

After that, we expect monthly meetings, this will be decided at the first meeting.

Current Membership

 * Mike Kirkwood, Polka
 * Paul Trevithick, Parity
 * J. Trent Adams, DataPortability Project HCTF
 * Joseph Cerro, DataPortability.org Health Care Task Force
 * Drummond Reed, Cordance, Parity, OASIS XRI & XDI TCs

Sign up for the mailing list provided by ID Commons http://lists.idcommons.net/lists/info/usercentrichealth

Current Stewards Council Representative and Alternate
Stewards Representative - Mike Kirkwood

Alternate Representative - TBD

Current Links
User-Centric Health

Related Groups (Suggested)
Open ID Foundation

Information Card Foundation

Project VRM

OASIS XDI Technical Committee

Health 2.0 Accelerator

Data Portability Healthcare Task Force

ASTM E 31

Liberty Alliance

OASIS ebXML RR

History
Health is a unique use case of the internet identity, it has special because of the privacy and sharing requirements of the data.

Many individuals have a keen interest in how Health plays out using the internet and the web. Mike Kirkwood has been attending the IIW and Data Sharing Summits to get grounded in the identity space. After attending Health 2.0, and becoming part of the Health 2.0 Accelrator, he started this group to merge the concepts of user-centric-identity and Health information.

This group was started to focus on taking the document and data standards of the Health community and packaging them on behalf of a user in their user-centric identity, and create a working stack to share with the community and evolve as group.